Less
than 24 hours later I found myself in our car going 20 miles an hour, trying to
avoid every pothole and crack in the road (which in downtown LA is close to
impossible). Cars sped around me and honked as they passed. People gave the
same dirty looks that I am sure I have given while in a rush to go about my
life. In the passenger seat was my love, still in his hospital gown because it
was impossible to get pants around his broken pelvis. The morphine they had
given him was starting to wear off; every bump we hit was an unnecessary
reminder of broken ribs. His right arm was bandaged in this bulky monstrosity
of a situation. They had gotten him to the car in a wheelchair, but only sent
him home with a cane. Somehow I was supposed to get him from our car, up 4
stairs in the entry and then to the elevator, up three floors and down the hall
to our loft. We got there. It was painful, but we got there.
Nothing
could have prepared me for what was to come in the days, weeks and months ahead. I had
never been in a situation where I was the sole caretaker of someone.
The
first few weeks, well months actually, were excruciating. He could not move or sit up
on his own; he could barely stand, let alone walk. He could do nothing for
himself. He was in an unbearable amount of pain. He needed pain medication
every two hours on the dot. He had no appetite and we learned the hard way that
taking pain meds on an empty stomach was a bad idea (vomiting plus broken ribs
doth not a good pair make). The bruise on his hip started to spread up and down
his body, it was the colors of a super intense sunset – the deepest purples
that faded out into the brightest yellows. It was the only thing that changed
in the beginning. It was a strange evolving work of art in some ways. Each day
we would document the progress of the bruise, it was like we were clinging to
its movement, the only evidence that there was passing of time - clearly we
were in need of serious sleep.
For
me, the most unexpected personal struggle in this whole ordeal was sleep (or
lack there of). A large part of how I deal with being bipolar involves plans.
Lots and lots of plans. Schedules, calendars, rules, exceptions to those rules,
non-negotiables, etc. This probably makes me seem super uptight, but it is
really not the case. It is just survival. It’s the way it has to happen. I have
wrapped my mind around this. I am good at it. It works for me. The number one
non-negotiable, must-have, plan above all plans is sleep. One of the first
things that they tell you about being Bioplar is that sleep is the corner stone
of mental stability. It creates a base line – too little leads to mania and too
much can slip you into deep depression. For me either of those ends leaves me
experiencing mixed states, which is both anxiety-ridden mania mixed with
overwhelming depression at any given moment in the day. Sleep is something that
I take very seriously. It takes commitment.
So
now, with out warning, I found myself in a place that was completely out of my
control. I had to wake up every 2 hours to make sure that pain medication was
taken on a non-empty stomach. Not just a quick up then down again, but it
required sitting up (extremely painful), standing for a moment (extremely
painful), forcing some jello down, plus pain pill (extremely painful) and then
laying back down again (extremely painful). It was so terrible, I wished every
moment that I could somehow take this away from him, I felt desperate and I was
exhausted. I was only sleeping about 45mins to a hour at a time. The first few
days I was in a zone, but then it started to wear me down. One week in: I cried
any time I was alone, it was uncontrollable. Two weeks in: the tears keep
coming...in the shower, in the car, with the door closed in the bathroom. Three
weeks in: I started to be short and irritable and dare I admit, bitchy. Four
weeks in: I walk the line on the edge of losing it at any moment. Suddenly it
was about me and I tried everything to stop it, but it took on a life of its
own. I started to feel angry and guilty – here, my dear boyfriend who has
literally been hit by a truck has to figure out a way for me to get some more
sleep. It became his number one goal. I remember the night we made it to a four-hour
block of sleep – it was magical, we celebrated in the morning. I don’t know
what I would do with out him.
I
still carry some of that guilt. My mental issues prevented me from being the
best caretaker that I could be. There were moments that I was less than
pleasant. I feel really awful about that. And the truth of the matter is that
it could have been so much worse. I knew this, yet it was impossible to get a
handle on myself. At the same time it was an opportunity for us to work as a
team. I started to realize that this had to be a two way street, by letting him
care for me in some ways, he was maintaining the smallest bit of normalcy. And
that was imperative to his recovery. Weeks and months passed – he started to
get out of bed on his own and into a wheelchair, then he could walk with the
cane and now he is in physical therapy and making small improvements each day. It
has been and will be a very long and hard road, but he is strong and determined. It is
nothing short of incredible.
So
that brings us to now. It is the distance that allows us to see a little more
clearly.
We
stand, closer that ever before, having learned lessons that neither of us
expected and thankful for the place that we have come to. While things are still very difficult, our future is bright,
and for that my heart is full of gratitude.
End
note: I have to take a moment to say that I would have never made it through
the early weeks and months with out my mom, cousin, niece and 2 dear friends. They came
over and checked on him, they made us meals and were just there. I will be
forever grateful for those acts of kindness and love. They are everything to
me.